The Keeping Well with Sickle Cell project was a holistic programme aimed at improving the health and well-being of people with Sickle Cell Disorder. A number of activities, workshops and events were delivered over the past 12 months that included:
Supported by Big Lottery Awards for All, the project was officially was officially launched on 4th June 2017 during a Community Family Fun Day held at Soho House Museum. This event provided an opportunity for the public, families and professionals to learn more about the programme in addition to accessing health related information and hearing from speakers on the day.
The Expert Patient Programme (EPP) helped people affected by sickle cell to take more control of their health by learning new skills to manage their condition better on a daily basis. The programme encouraged participants to be an active self-manager, through the following sessions:
This was opportunity for people affected by sickle cell to:
As part of the project 24 participants also successfully completed short courses and achieved qualifications in First Aid and Food Safety.
As part of monitoring and evaluation, thirty-six participants completed a self-assessment questionnaire based on a self-rating scoring system on a number of statements. A number of follow up interviews were conducted. The findings identified the following: